Well, it is Saturday morning and I'm blogging. That's odd. Caleb's been falling asleep a bit later lately but hasn't been sleeping so well. Last night he was so tired but for some reason couldn't sleep so well. Poor guy...I tried soothing him by massaging his neck and rubbing his head. (He loves that and always gets sleepy when I do that) It helped him out I think.
Caleb's wheelchair got taken back yesterday. We were bummed out...so now we have the loaner one again! They are doing some adjustments on his chair so that it fits him better. His old physical therapist stopped by in his session early on this week and noticed a bunch of things that needed to be adjusted on his chair. I agreed and had some other things that we had noticed about it too. So I guess it's good that it's going to fit him better. I'm sure it will make him a lot more comfortable. But they were saying that one downside to fixing it would be that it would leave less amount of him to grow into. Meaning he won't be able to use it for as long. While that does sound disappointing, I believe that he won't need it for that long...so I really don't care. :)
Rainbows have been a fascination for both Brandon and I since Caleb said "rainbow." I journaled the other day on the story of Noah and how God sent the rainbow to remind us and him of his promise! So I'll share a bit of what I had got out of it.
When Caleb said rainbow, we were both extremely ecstatic. But for me, I was also a bit sad. I wasn't there when he said it...I didn't get to hear it and that really hit me. Especially since he never said anything else since. But then as I started to think more about it I realized that God had played a huge part in that. Plus I started to think about why he said that particular word. I think God wanted Caleb to remind us of his promise. Since a rainbow represents a promise God made to Noah, I also believe that it's a symbol of ALL of God's promises! So maybe God wanted to remind us that YES he is here and is healing Caleb! He IS fulfilling his promise! And we must continue to look forward till God completely heals Caleb! The funny thing about that too is that I've seen a rainbow every single day since then! And it always brings a smile to my face. As Brandon and I were eating dinner last night, I was sharing my devotional time with him and he had been thinking the same thing! Rainbows brings smiles to our faces despite what ever we may be going through that day....and I am so grateful for that and for all that God has done to remind us everytime it seems like nothing is happening.
The star thing that we bought Caleb for Christmas seems to really fascinate him. It's so funny because everytime it's turned on for him at night, he fights to stay up a bit longer just to look at it. The other night when he woke up very early I turned it on for him. His eyes were only slightly open but after I turned it on they immediately became very widely open. Bad move...he was up for a very long time. And I was very exhausted the next day. But I got some physical therapy in with him since he was up.
Brandon and I will be going on a four night trip next week! We are both very excited! It's our very late honey moon...I guess. It was just planned a couple days ago. What happened was that my grandparents had already had a trip planned but my grandpa is having a hard time walking now and wouldn't be able to go. So my grandma wanted to cancel. But being that it was so last minute, she was unable to of course. So she said she could switch over the trip to our names if we could go! (We just had to pay a little) But it's much more worth it for her that we use it instead of it going to nothing. So in two days time we were able to arrange everything and we are going! God definitely wants us to go...I'm not sure why, but he has his hand on it! If he didn't we wouldn't have been going! Maybe he just wants us to take time off alone and to enjoy each other and to miss the boys and be so much more rejuvenated when we come back home! Who knows...I guess we'll find out later. So we will be going to VEGAS! :) We were able to book a show too which I am very excited about! We'll be watching Stomp! We're still talking about seeing some other shows that I really want to go to. But it's pricy...so we're not sure yet. The crazy thing about it is that our nursing hours for that week are really good already! And Patrick will be filling in where we need some extras. We asked our nurses to come in a little earlier though so that my mom can make it to work on time. We're still waiting on one more nurse though to see if she can. My mom will be staying with Caleb through the night everynight and also in the evening for one night when we don't have a scheduled nurse. Please pray that Caleb will sleep better than every before for her so that she isn't up all night and tired all day at work. My sister will be watching Micaiah the whole time we're gone. She needs prayers! That little one is a little crazy...but she's a pro at it. She's got three and one more on the way. Brandon's mom will be coming down on two of the days to drive Caleb to his appointments with the nurse too. Brandon was able to get off of work and will be missing two school days but that was also ok'd. Crazy! Everything works out. Thank you Lord for all these hearts you've placed in our lives to help us out so much! We're so blessed with such wonderful nurses and family and friends and compassionate bosses (Brandon's). So please pray for everyone helping us and watching our boys for us. I'm really gonna miss them...probably by the time we get there. (Brandon says I'm such a little sucker when it comes to leaving them.) I agree.
Oh and I was able to combine Caleb's weekly appointments into two days a week which is much better than three. But we also have a Saturday morning appointment every week too. Plus on occasion he will also have other doctor's appointments so that just helps out so much! Then I've got Micaiah's appointments that I have to take him to which I often push back because of something with Caleb. (That's horrible, I know) Micaiah's almost 14 months now and he's only going for his 1 year check up this week. When I had scheduled his appointment last time, Caleb had a fever and I didn't want to have Micaiah not feeling well from all the shots at the same time so I held off. And now he's got his Easter Seals people that need to come over to reassess him... But all these appointments are great for Caleb so thank God that he is able to go to them!
Anyways, God Bless you all and thank you so much for continuting to pray for Caleb's healing and for all the other things that we need prayer for! You can't imagine how much that means to us!
3 comments:
Happy New Year Brandon, Kehau and Boys!....and have a great time on the somewhat belated honeymoon. It's never too late to catch up! :)
May Gods joy and blessing be with you and give you the peace of leaving the boys with loving family and great nurses.
May the two of you get refreshed in spending well deserved time together... just the two of you!
Enjoy and relax!
Gods blessings and love
Kent and Elisabeth
Hi Kehau, Brandon, Caleb & Micaiah! I really hope that you are having a great trip...you both need R & R time and just to be with each other alone. I know that this year will bring many great and wonderful things for your family. God keeps his promises...and Caleb will continue to improve and will stand as a living testimony to just how great our God is! I also see the wonderful person God is creating in Micaiah as well...he's so adorable and as little as he is shows so much compassion for others. Be Blessed!!
Love You All!
Nat & Rach
Just wondering how you are all doing? How was your trip? Did everything go smoothly at home? Is everyone staying healthy?
Love in Christ,
Sue
Post a Comment