Aloha everyone! So sorry that I haven't been keeping up on the blog. I know you're all wanting to know what's new! There's a lot and I'll try my best to remember all that I wanted to share:
We recently took Caleb to his new neurologist and was very pleased. The new doctor is very informative and gives us pros and cons of everything, gives us his opinion, but ultimately leaves decisions up to us. So with no hesitation we have decided to start lowering Caleb's phenobarbital medication which is a seizure medication. (He hasn't had a seizure since the first couple of weeks from the date of his accident.) The cons for lowering it is of course risking that he may have a seizure which would of course not be good. But we are trusting that the Lord is watching over him and that it WILL NOT happen. Please stand in faith with us and pray that there will be no seizure activity EVER!
Caleb had his first try in the hyperbaric chamber at Abby's house last week. He did really well and was able to tolerate the entire hour in there! He just cruised in there looking around and we could see him and talk to him through a little glass window. We are so grateful for Abby and her family. I can't imagine going through this without them.
Caleb continues to amaze me on his reaction to doing things when asked. He's so awesome! Brandon and I have been continuing to make memories with the kids...often times at the park. We also took the boys to Sea Life Park last Saturday and had a wonderful day with them. I'm beginning to look at no nursing days as a blessing in disguise. When nursing doesn't plan out how I've requested it and my mom is unavailable, I can look at it as, God's way of telling us to have some quality time with Caleb. It fills me up to just have family time at the park.
Today Caleb went for a half dip in the pool for the first time since the accident. Patrick (Caleb's nurse) took him in after they had been hanging out and reading in the sun. Brandon was there with them also. We were surprisingly totally fine with it all. No crying, no horrible thoughts. All was good and Caleb kept lifting his foot out of the water when he was told to. So I think Patrick might be taking him for a dip in the pool whenever he is here...and that is totally okay with us.
Last week thursday, a friend of ours from church came over to pray over Caleb and lay hands on him. He has an amazing gift of prayer and healing. Caleb's reaction while he was prayed over was phenomenal! There is no way to describe his reactions the entire time...continuously! He was so excited...his tongue was going in and out of his mouth and Caleb grunted continuously, (yes, we heard his voice! no words but it was sound which was music to our ears) as he prayed for Caleb's speech to return. Right after he was done praying, Caleb instantly fell into a deep sleep and was out for the night. We must continue to pray over Caleb and laying hands on him every day. That's our duty.
In devotions we've been reading the book of Job. And what a testimony it is to help us through this! Here's one of my prayers from my devotions a week ago:
Lord Jesus,
Thank you for all that you have given me. Thank you Lord for being all that you are. I give all my praise and glory to you! My life is for you Lord, and only you! Thank you for permitting Satan to test us through this trial. He has been hard at work but we've fooled him many times. Thank you for this test...it has only brought me closer to you. Thank you Lord for your love and power over it all. I will praise you in this storm and any more that may come because I know now that life without you is nothing and I can't live without you. I know that I wil suffer as a believer but what does that matter? It's only for a little while compared to an eternity with you! I love you so much and can't wait to be with you in heaven! Amen.
Well, I know there is much more that I left out and it will come to me as I lay down to sleep. So I promise that I will post another blog very, very, soon! Thank you for continuing to pray for Caleb and us! We love and appreciate every single one of you! God Bless!
2 comments:
Aloha Kehau! WOW...what an amazing update...I should not be surprised at Caleb's progress but I always look forward to hearing the latest. I cried happy tears while reading about what has been happening. What a blessing it must have been to hear Caleb's voice. Rach and I have been praying so hard ... it is a Mom's joy to hear their child speak and laugh...we look forward to the day (verrrrrry soon) that you will hear that loud and clear. God has put so many amazing people in your path and in turn you have taught us so much about patience and faith and prayer. Remain faithful and steadfast as God continues to show you little glimpses of the miracle he is weaving for you.
We Love You!
Nat & Rach
Thank you for the update. I will be praying that all will go fine as you wean him off the seizure med. I will pray that you will see no seizures. I'm so glad to hear that Tiffany is letting him get into the Hyperbaric chamber. You will begin to see new things after he dives.
I remember the first time we heard Luke make a noise, what joy that was to our ears. I will be praying that you will hear more sounds all the time.
Be blessed and remember God makes, all things beautiful in His perfect timing.
Love in Christ,
Sue
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