Tuesday, July 17, 2007

Rollercoaster Ride

Well, life has been quite a long rollercoaster ride and I don't know when this ride will come to a stop. You know how when you ride a rollercoaster you can sometimes see the big drop that's coming so you can prepare yourself quickly before it happens but it still gives you a big rush and then there are those sharp turns or unforseen drops that come along that you have no time to prepare for and it makes your heart fall to your feet? Yeah, well that's how it's been. I've been (we have been) coming across those turns that I can't see and falling into a pit. I really felt like I was going to lose it...finally. But I'm back up thanks to a wonderful Christian friend and God's never failing love for me. And this morning when I woke up I remembered about Ephesians 6 and put on the Armor of God. I'm ready for battle!

Caleb continues to get better and more limber than ever! Today I have to go to another meeting with the DOE. I think I've decided not to send him to school right now. I'm going to try and talk to them today and see if they can meet what I'd like to request but if not I will keep him home. He's getting great care at home anyways! Caleb's suctioning also has decreased. I've noticed that it increases when he is having a feeding. He has also been sleeping pretty well. Off and on he sleeps 9 or 10 hours but gosh to look back at how it was when we first brought him home...what a blessing! Caleb is sure growing too..he's not so skinny anymore and he's grown so tall! Oh and I've finally got an appointment for him to get a speech evaluation tomorrow so hopefully he can start on some speech therapy. I also called the new neurologist to get an appointment for him...he's booked till October but at least we will get to see someone else.

I think I forgot to mention that there was an article in the Makai Lifestyle Magazine (find it free at Jamba Juice) I don't know if it's still the same one out though.

Well as we go through this not so fun rollercoaster I've got to remind myself to keep looking to God, to pray every moment I get, and to remember that "I can do all things through Christ whom strengthens me." I can do this...I've got to stay above it for my sons...I've got to keep it together...I'm not going to lose it! The scripture that I put on the top of this blog...is what keeps running through my mind right now. I've got to keep on that and remember it always.

At PURSUIT we are learning about the Power of Words. This past friday was about using encouraging words. I thought about Caleb and how we have to constantly praise him and encourage him for his improvements and keep on telling him that he can do it and not to give up. I also really thought about how all of you consistently encourage us to keep going and not loose faith with your wonderful comments on this blog, or thoughtful gestures or words when we bump into you at church or wherever we may go. Do you realize how powerful your words are? It is a huge part in our walk with the Lord and with Caleb at this time. So just to encourage you to always use encouraging words to everyone because you can really change someones day as you sure do for us everyday! Sometimes it is hard to do...I struggle with it everyday. But I think I've realized how powerful it really is.

Before I end today...A kind lady who was in Hawaii when they aired Caleb's story contacted me and wanted to make a little "store" online for Caleb to help with some costs. You can check it out at www.friendsforcaleb.com
I already put in a large order...

God Bless you all and thank you for praying for all of us...especially for Caleb!

2 comments:

luv ur self said...

Kehau & Brandon,
My heart and prayers go out to your family and Caleb. Ever since I came across a "pray for caleb" sticker on a neighbors car, a few weeks ago...and went online to read about Caleb's story,I've been praying daily for Caleb's renewal. It's so good to hear of Gods working in Caleb's life.

You will, have your ups and downs, It's only natural...but It's important to stay focus, be strong, and have the faith and trust in God for Caleb's healing.

Caleb is a special boy...he is surrounded by fabulous friends and family members...reminding him how absolutely loved and cherished he is.

I pray that there be joy and fulfillment in everyday for Caleb!

God Bless Your Family and Caleb,
Mel

Unknown said...

Hi Kehau...What a blessing it was to see you at church. Caleb is just such an awesome boy...God is all around him. Our prayer is that God covers you and your family and gets you through all the trials. It is so difficult to keep walking and not stumble here and there along the path that God has chosen for us. The tests are all about what you do when you fall...never stay down...if you keep getting up and keep walking God will definitely lead you toward that goal that is a strong, loving and faith filled family. What an honor you and Brandon have to be parents of a child that continues to bring precious souls to God. The reward will come ... it will be huge and marvelous. Until it does - stay strong...dig deep into the Word and find time to be still and listen...God WILL get you through. We'll be here too if you need us!
Love You,
Nat & Rach