That was so nice how they put together Caleb's story on KGMB. It made me cry...weird...but I guess to see it like that it's different then talking about it or living it day by day. I watched it over and over on DVR...and cried over and over...I think what really made me cry was watching his home video that they put in the story. I pray that many people were moved by his story and hopefully will turn to God and see all His glory through this big storm.
Today Caleb had an appointment with the ENT specialist. She is going to be ordering him some speech therapy and a pacimere valve (sp?) so that we can wean him off the trach. Everything looked good. I got to see down his trachea with a neat stethoscope that the doc had. It was a cool little gadget. While we were at the hospital today Caleb was having a lot more movements than normal. We weren't really sure if it was seizure activity or not. Our nurse told us it could be or it might not be. His stats pretty much stayed the same and his pupils weren't dialated. But sometimes that doesn't mean that they aren't having seizures. So we had to call his pediatrician...and try to get an EEG...and almost had to go back to the ER. But we tried to avoid that and instead we called the neurologist who advised us to just up one of his meds (phenobarb) and wait till we can see the EEG results. (Our appointment is on Tuesday) CRAZY!!! That's the earliest appointment they had and they said to still expect to wait awhile. I think they might need more than just one person...they need to hire another technician. Anyways...that was a close call. I was pretty down and sad dreading going back to the ER and possibly having him re-admitted once again. But that wouldn't have really served any purpose anyways. Thank God.
He's doing fine now. He's been resting. Tomorrow we are back at Kapiolani for more therapy and another doctor's visit.
Tomorrow (Friday 5/18) night is Ho'ike at Farrington for New Hope Oahu. It's going to be an awesome one. They will be showing Caleb's story and our testimony and there is also another wonderful testimony that will be featured. We pray that people coming will turn to the Lord after hearing the testimonies and watching all the beautiful dancers praising God.
Tomorrow is another long day! Happy Aloha Friday to you all! Hope you were able to catch the 10:00 news! It was a wonderful ending to our hectic day....God Bless
3 comments:
Aloha Kehau,
Following your story and my father's story just give me goose bumps. It is unreal how your faith is!! Praise God!!! I too cried when I saw the news report but we know God works in mysterious ways. Caleb is bringing many to the Lord and we need to remind Caleb how awesome he is. Thanks for sharing your heart and being a light to the Lost. We Love you.
Love,
Daniel and Joy
Dear Kehau & Brandon,
You may not remember us, but we are friends with Aunty Di.
We would like to thank you for letting us share in your wonderful miracle Caleb...You've been such and inspiration to all and the story couldn't have been done any better..The clips were how we all remember Caleb, so carefree..
Keep up the wonderful job your doing taking care of your family, stay strong and always believe!
Much love and aloha,
Mike and Claretta
Hi Kehauie, Brandon, Kamakana, and Micaiah!
This is Shanellie finally sending you folks a comment. I have been so diligent in keeping up to date with your folks' blog entries on Kamakana, however, I am not the most computer literate. In fact, i just wrote an entire message to you folks and it didn't go through because I hadn't set up an account yet. Pheww, so here we go with a second attempt!
Just want to first of all let you guys know that you have been on our hearts, and in our thoughts and prayers very heavily over these past months. I know we haven't seen or spoken to you since Kamakana was first admitted to the hospital, but we haven't forgotten about you. And, I know I had to work the evening that you folks were married at Kapi'olani, but do expect something in the mail very soon! There is no way that we weren't gonna bless you folks in some way.
Anyway, where do I begin? Uncle Ian has been keeping us up to date with Kamakana's daily progress as he's over at your folks' house more than he is at home! We jokingly call him an Engle already! But, we're so glad that he is one of the Engles. As the rest of us have all grown up and have busy lives, it's nice to see that one of the Sanborn's and Engle's are still going really strong. As for the rest of us, we know that we'll always have a close family bond despite our hectic schedules!
We made sure to watch Kamakana's story on the news last night. They did such an awesome job putting his story and testimony out there! It will continue to bring so many to the Lord! It of course brought floods of tears to our eyes as we could see how much you folks miss his energy and rascalness! But, with what the Lord has done thus far, there is no doubt that His plans for Kamakana have just begun to unfold! It's just tough because now's the time to be patient.
I know there's still no set date for kamakana's fundraiser, but do know that when and where, we are there.
I'm so glad to read too that you have an even stronger confirmation/calling to become a nurse! It is such a purposeful and fulfilling calling, it truly is! I can leave the hospital feeling absolutely stressed, overwhelmed, and exhausted, but when I see how I've truly touched a person's life and helped to support them in their stay at the hospital, that's all I can do. And, now that you folks have truly experienced how it is to be on the receiving end of being a patient and family in the hospital, you will be able to reach out to patients in a way that so many nurses can't even comprehend! Continue to push through your studies. It will be hard, nursing school is by no means a breeze, but you will get through! And, never hesitate to call Shauna or I for advice either!
Well, I often write novels. Ask Crystale, I leave the longest voice mails and often get cut off so have to call the person back to leave the ending of the message! But, I really wanted you folks to know just how supported and loved you truly are by all of us! Continue to strengthen your relationship with the Lord and lean on Him for support. Enjoy dancing and sharing tonight at the ho'ike. I absolutely loved dancing for the Lord; nothing could compare. Not Merrie Monarch, or dancing for any other audience could compare to dancing for an audience of ONE! Take care until we talk again.
All our love,
Shanelle and Julian
P.S. I'm not sure if your mom told you folks but we gave in last week and found out the sex of our baby......It's a BOY!
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